Girl Born with Her Heart Outside Her Chest:
This girl was born fifteen years ago, and it made headlines. Her mother, Dari Borun, gave birth to a girl with Pentalogy of Cantrell, a rare disorder in which the heart is positioned just beneath the skin rather than inside the chest cavity. This disease affects only one out of every million births.
Virsaviya’s case is a true miracle: Girl Born with Her Heart Outside Her Chest
Young Baby has surmounted numerous obstacles as a result of a unique disease that left her heart vulnerable, without a rib cage or abdominal muscles. During her pregnancy, physicians advised her mother, Dari, that the unborn child might not survive the pregnancy or the birth.
Despite the grim predictions, Dari’s deep love for her unborn child drove her to move forward with the pregnancy. Today, this extraordinary young girl thrives, embracing life and engaging in activities just like any other child her age. “She truly is a miracle and I love the way she is. She is absolutely unique. She is one in a million,” Virsaviya’s mother shares.
Her mother is dedicated to raising awareness about Virsaviya’s condition.
Instead of worrying about Her condition, her mother, Dari Barun, happily posted bare-chested photos of her daughter on Instagram. These photographs reveal Virsaviya’s exposed heart in a variety of stances and settings. Dari most likely gained strength from her energetic daughter, who enjoys dancing, sketching, riding ponies, and listening to Beyoncé. Despite the fact that she has limited running abilities, she enjoys the activity. To protect her heart, Virsaviya constantly wears soft garments.
Dari says, “I love my daughter just the way she is.” That is how God created her, but I do not want this illness to affect subsequent children if it can be avoided.Instead of worrying about Her condition, her mother, Dari Barun, happily posted bare-chested photos of her daughter on Instagram.
Virsaviya’s condition, known as Pentalogy of Cantrell, affects just one in a million live births. Remarkably, her heart condition doesn’t cause her pain or limit her daily activities.
Although she can participate in regular activities,she must take extra care to protect her chest from injury, as any harm could severely affect her exposed heart beneath the skin. To shield her vital organ, she consistently wears a protective chest covering.
Despite the potential risks, Virsaviya leads an active and vibrant life.
The mother explains, “It’s difficult for her to live with her heart on the outside of her chest because it’s so exposed and delicate because it’s just beneath the skin’s surface. Knowing how vulnerable she is can sometimes generate anxiety for both myself and Virsaviya.”
Despite being aware of the serious hazards involved with her condition, the girl refuses to be held back by it. She explains, “It can be difficult when my oxygen levels are low and I feel lightheaded and dizzy.” But I enjoy remaining active, singing, and dancing with my pals.
Till now Virsaviya gets a lot of support from her fans on Instagram, who call her story a true inspiration. She adds, “My heart is different, but it makes me completely unique and I love that.”
It’s inspiring to see how parents embrace and support their children, celebrating their uniqueness despite their differences. For example, little Tessa, born without a nose, earned the charming nickname “Voldemort,” and she proudly embraces her individuality with confidence, bolstered by the unwavering support of her family.
Pentalogy of Cantrell is a rare and challenging condition that requires a multidisciplinary medical team, including pediatric surgeons, cardiologists, neonatologists, and genetic counselors. Advances in prenatal diagnostics and neonatal surgery have improved outcomes, but early detection and comprehensive care remain critical for survival and quality of life.
